Privacy Policy

Effective Date: September,2025

The Diabetes Data Rights Charter (DDRC) is a collaborative initiative created by and for people with diabetes, in partnership with colleagues from Birmingham Law School, University College Dublin, and the Steno Diabetes Centre. We are committed to protecting your privacy, respecting your data rights, and ensuring transparency in how any information collected through this website is used.

1. Information We Collect

We collect only the minimum information necessary to operate this website and engage with the diabetes community. This may include:

  • Information you provide directly (for example, through contact forms, feedback submissions, or newsletter sign-ups).

  • Basic technical data (such as IP address, browser type, and website usage statistics) for security and performance monitoring.

  • Cookies or similar technologies for site functionality and analytics (where applicable, subject to your consent).

2. How We Use Your Information

We use information solely to:

  • Share updates about the DDRC and its progress.

  • Gather feedback from the diabetes community.

  • Improve the website’s functionality and accessibility.

  • Ensure compliance with legal and security obligations.

We do not sell, rent, or otherwise monetize personal data.

3. How We Share Information

We may share information only in limited circumstances:

  • With academic partners or collaborators involved in the DDRC project (strictly for project-related purposes).

  • With service providers (such as website hosting or analytics providers) who are bound by confidentiality and data protection obligations.

  • Where required by law, regulation, or legal process.

4. Data Rights

In line with the Charter’s principles, you have the following rights:

  • Access to any personal information we hold about you.

  • Request correction or deletion of your information.

  • Withdraw consent (where consent is the basis of data collection).

  • Request information on how your data is used.

To exercise these rights, contact us at: [Insert Contact Email].

5. Data Security

We use appropriate technical and organizational measures to protect personal information against unauthorized access, alteration, or misuse. However, no system is completely secure, and we cannot guarantee absolute security.

6. International Access

As this is an international project, your data may be processed in different countries. Where this occurs, we take steps to ensure compliance with applicable data protection laws (including GDPR, where relevant).

7. Links to Other Websites

This website may contain links to external sites (for example, partner universities or project reports). We are not responsible for the privacy practices of those sites.

8. Updates

We may update this Privacy Policy periodically. The effective date at the top indicates when it was last revised.

9. Contact

If you have any questions or concerns about this Privacy Policy, please contact us at: diabetesdatarights@contacts.bham.ac.uk